This practical course has been designed for clinicians, researchers, registry coordinators and other healthcare professionals planning to or currently collecting PROMs, and will be based on a conceptual framework model and guidelines for the use of PROMs in clinical registries.
This introductory one-day course will give an overview of topics ranging from methodological development through to dissemination of PROMs data, including:
- What is a PROM and why use them?
- A look at the different types of information we can get from a PROM
- Instruments used to collect PROMs
- Disease and treatment specific PROMs vs generic instruments
- Development and validation of PROMs
- Item banks and their use in clinical registries
- Ethics and consent for PROMs collection
- Interpreting and presenting PROM data in a registry setting
The workshop is aimed at a non-technical audience and is suitable for people without previous experience in PROMs.
Presenter: Dr. Rasa Ruseckaite
- Equip participants with a practical understanding of the key concept around PROMs - what they measure and why use them in a clinical registry setting.
- Provide delegates with practical guidance on choosing the appropriate PROM based on a conceptual framework model and guidelines for the use of PROMs in clinical registries.
- Gain greater insight into the different types of PROMs available, issues of validity and reliability, interpretation, data analysis and reporting in a registry setting.